Disability Politics and Care examines a provincial direct-funding program to illuminate what happens when people with disabilities take control of their own care arrangements. In addition to investigating responses from a wide range of stakeholders, Christine Kelly reflects on the broader social and political implications of these types of programs. She probes the divide that exists between rejections of care by disability activists, on the one hand, and attempts by feminists to value gendered forms of labour, on the other. Rather than trying to find common ground between these viewpoints, Kelly explores how maintaining a tension between them could positively transform the understanding and practice of care. Enlivened by the voices of disabled people, attendants, and informal supports, this book uses one independent living program as a starting point for untangling much larger philosophical, theoretical, and material questions about (self) determination, (inter)dependence, governance, and justice.

In Black Disability Politics Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women’s Health Project alongside interviews with contemporary Black disabled cultural workers, Schalk identifies common qualities of Black disability politics, including the need to ground public health initiatives in the experience and expertise of marginalized disabled people so that they can work in antiracist, feminist, and anti-ableist ways. Prioritizing an understanding of disability within the context of white supremacy, Schalk demonstrates that the work of Black disability politics not only exists but is essential to the future of Black liberation movements.

Disability Politics and Theory, a historical exploration of the concept of disability, covers the late nineteenth century to the present, introducing the main models of disability theory and politics: eugenics, medicalization, rehabilitation, charity, rights and social and disability justice. A.J. Withers examines when, how and why new categories of disability are created and describes how capitalism benefits from and enforces disabled people’s oppression. Critiquing the currently dominant social model of disability, this book offers an alternative. The radical framework Withers puts forward draws from schools of radical thought, particularly feminism and critical race theory, to emphasize the role of interlocking oppressions in the marginalization of disabled people and the importance of addressing disability both independently and in conjunction with other oppressions. Intertwining theoretical and historical analysis with personal experience, this book is a poignant portrayal of disabled people in Canada and the U.S. — and a call for social and economic justice. This revised and expanded edition includes a new chapter on the rehabilitation model, expands the discussion of eugenics, and adds the context of the growth of the disability justice movement, Black Lives Matter, calls for defunding the police, decolonial and Indigenous land protection struggles, and the COVID-19 pandemic.

This book offers an approach to care and support policy prioritizing gender equality, disability human rights and dignity for all.

More than 1 billion people worldwide have a disability, and they are all affected by politics. This two-volume work explores key topics at the heart of disability policy, such as voting, race, gender, age, health care, social security, transportation, abuse, and the environment. Disability policy is no longer an area that can be adequately addressed within major areas of public policy such as welfare, health, labor, and education. Disability has become widely acknowledged in recent decades, partly because of the increasing number of disabled citizens across all demographic populations. Advocates argue that diversity of all kinds deserves recognition and accommodation. This set examines policies targeting disability to provide a multifaceted description of the political participation of people with disabilities as well as disability policy development in the United States. The first volume focuses on political participation and voting issues, and the second volume covers disability public policy. In these two volumes, numerous scholars and experts in the social sciences and humanities explore timely topics that are key to disability policy questions, including activism, voting, race, gender, age, health care, social security, civil rights, abuse, the environment, and even death. Readers will better understand the challenges that policymakers face in grappling with controversies over issues of social engineering and public policy, often attempting to reconcile majority experience with minority rights. The chapters analyze the history of disability politics, describe the disability policy infrastructure as it currently exists in the United States, and provide insight into current disability-related controversies.

This book seeks to explore how disability is understood and the position and experiences of disabled people both within and across different societies. The authors explore the question of politics in relation to specific struggles, providing a wealth of insights and ideas, and examine the nature and value of a social model of disability. They criticize exclusionary barriers while advancing a more democratic and participatory society based on principles of equality, offer cross-cultural insights and present stimuli for debate and further research. The text is accessible, topical, and provides new and innovatory thinking. This book will appeal to undergraduate and postgraduate students, lecturers and researchers with interests in education, social policy, sociology and disability studies.

This collection identifies the key tensions and conflicts being debated within the field of critical disability studies and provides both an outline of the field in its current form and offers manifestos for its future direction. Traversing a number of disciplines from science and technology studies to maternal studies, the collection offers a transdisciplinary vision for the future of critical disability studies. Some common thematic concerns emerge across the book such as digital futures, the usefulness of anger, creativity, family as disability allies, intersectionality, ethics, eugenics, accessibility and interdisciplinarity. However, the contributors who write as either disabled people or allies do not proceed from a singular approach to disability, often reflecting different or even opposing positions on these issues. Containing contributions from established and new voices in disability studies outlining their own manifesto for the future of the field, this book will be of interest to all scholars and students working within the fields of disability studies, cultural studies, sociology, law, history and education. The concerns introduced here are further explored in its sister volume Interdisciplinary approaches to disability: looking towards the future.

This book addresses the ways in which individualised, market-based models of disability support provision have been mobilised in and across different countries through cross-national investigation of individualised funding (IF) as an object of neoliberal policy mobility. Combining rich theoretical and interdisciplinary perspectives with extensive empirical research, the book provides a timely examination of the policy processes and mechanisms driving the spread of IF amongst countries at the forefront of disability policy reform. It is argued that IF’s mobility is not attributable to neoliberalism alone but to the complex intersections between neoliberal and emancipatory agendas and to the transnational networks that have blended the two agendas in new ways in different institutional contexts. The book shows how disability rights struggles have synchronised with neoliberal agendas, which explains IF’s propensity to move and mutate between different jurisdictions. Featuring first-hand accounts of the activists and advocates engaged in these struggles, the book illuminates the consequences and risks of the dangerous liaisons and political trade-offs that seemed necessary to get individualised funding on the policy agenda for disabled people. It will be of interest to all scholars and students working in disability studies, social policy, sociology and political science more generally.

Edited by four leading members of the new generation of medical and healthcare ethicists working in the UK, respected worldwide for their work in medical ethics, Principles of Health Care Ethics, Second Edition is a standard resource for students, professionals, and academics wishing to understand current and future issues in healthcare ethics. With a distinguished international panel of contributors working at the leading edge of academia, this volume presents a comprehensive guide to the field, with state of the art introductions to the wide range of topics in modern healthcare ethics, from consent to human rights, from utilitarianism to feminism, from the doctor-patient relationship to xenotransplantation. This volume is the Second Edition of the highly successful work edited by Professor Raanan Gillon, Emeritus Professor of Medical Ethics at Imperial College London and former editor of the Journal of Medical Ethics, the leading journal in this field. Developments from the First Edition include: The focus on ‘Four Principles Method’ is relaxed to cover more different methods in health care ethics. More material on new medical technologies is included, the coverage of issues on the doctor/patient relationship is expanded, and material on ethics and public health is brought together into a new section.

This book examines aspects of care such as training, ethnicity, sexuality and competence in practice. Topics include the nature of touch, how physical contact is intended and experienced, carers' duty of care, and risk management. The book also explores management considerations of best value, care standards, performance monitoring and inspection.