The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver. For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child’s success. Over and over, parents are being asked to reinvent the exact same wheels. According to the CDC, “Every 4 ½ minutes a baby is born with a birth defect in the United States.” That’s 1 in 33. There’s no handbook for how to do this. Until now. Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports gives parents the tools to conquer the stuff, so that they can spend less time filling out forms, and more time loving their children exactly as they are. With over a decade of experience navigating these systems for her own child, author Kelley Coleman presents key information, templates, and wisdom alongside practical advice from over 40 experts, covering topics such as diagnosis, working with your medical team, insurance, financial planning, disability rights and advocacy, and individualized education plans. Everything No One Tells You About Parenting a Disabled Child gives parents the tools they need to stop wasting unnecessary time, money, and stress. If you need to know how to actually do the things, this book is for you.

The honest, relatable, actionable roadmap to parenting a disabled child, covering topics such as diagnosis, school, disability rights, doctors, insurance, financial planning, and taking care of yourself through it all. 120,000 babies annually are born with birth defects according to the CDC. One of those babies was author Kelley Coleman's. She had to reinvent the parenting wheel. Just like every parent in this situation, every single time. There's no handbook for how to do this. Until now. Told with empathy and humor, Coleman's firsthand experience pairs with expert interviews in Everything No One Tells You About Parenting a Disabled Child to guide parents through the systems and realities of disability parenting. Coleman offers an authentic and encouraging parent‑who's‑been‑there‑voice alongside Letters to Myself, where fellow parents of children with various disabilities write a letter to themselves on the day they learned their child was disabled. With essential checklists and templates, key questions, and expert wisdom, overwhelmed parents can immediately put this guidance into action. Everything No One Tells You About Parenting a Disabled Child is the definitive roadmap to becoming the parents who take action, who best support their disabled children, and who celebrate their children exactly as they are. Feature film development executive turned writer of things and reinventress of wheels, Kelley Coleman writes for family audiences, and developed early versions of movies including Frozen, Tangled, and The Princess and the Frog. As a disability rights advocate and parent of a child with multiple disabilities, Coleman is passionate about writing and elevating stories that feature authentic representations of people like her own son - and looks forward to the day he will write his own story. She and her family live in Los Angeles.

Painstakingly accurate, up-to-date, and a highly readable.... There's no question why this respected resource is pediatric nursing's foremost text. This new seventh edition maintains the high standards established by previous editions, and broadens the focus in the areas of community care and evidence-based practice. Readers will find it highly appealing with superior illustrations and a beautiful full-color design throughout.

"This book should be a great help for parents of a child with any handicap."--Dr. Benjamin Spock "I think parenting is probably the hardest job there is, if it is done well, and parenting a handicapped child takes immense dedication, energy, and self-knowledge. If even one of my suggestions makes your life easier or improves your child's life, then the time and energy I have put into this book will be rewarded many times over. Most of the parents of handicapped children seem to me extraordinary people, and the care and love they show their children are among the highest tributes to the human spirit."--Charlotte E. Thompson, MD Practical, complete, reassuring advice on: * Coping with tragedy: How to handle the sorrow, anger, and guilt of a devastating diagnosis or a progressive disease * Heath care: How to find the best professional help; keep up with new treatments, medications, and research; and cope with the costs * Education and development: How to select educational programs that are geared to specific disabilities and designed to fulfill your child's greatest potential in adolescence * Family and friends: How parents can help themselves and each other, how to help siblings adjust, and what to tell well-meaning friends and relatives * Fun for handicapped kids: A comprehensive guide to places that are accessible to handicapped children "An accessible and sensitively written handbook."--Boston Herald

Gives an insight into what it means to be a parent with learning difficulties. By looking at the common threads in their lives, the authors aim to produce personal accounts that are true to the experience of parents themselves.

Help your learning-disabled child enjoy school and learn more effectively. This book shows parents what they can do at home to help their learning-disabled child at school. Using nonthreatening, nontechnical language, Tuttle and Paquette describe a variety of learning disorders: attention deficit disorder, dyslexia, hyperactivity, and speaking, reading, writing, and math disabilities and difficulties. They show parents how to become more effective advocates for their child in the school system. They also discuss how to work with the special education team, and tell parents what legal rights they have and how to take advantage of them. The authors pay special attention to putting learning disabilities within the context of the entire family -- how one child's special needs may affect other siblings, grandparents, etc. "Parenting A Child With A Learning Disibility also covers the tests and evaluations used by schools, so parents will know what to expect and how these tests can affect the child's future. The book contains a glossary of terms used by special educators and testing personnel so parents will "feel at ease discussing their child's needs with educators. Throughout, the authors' tone is encouraging and reassuring, and parents will be left feeling they can succeed in helping their child.

"Countless Americans, perhaps as many as ten million, are affected by some form of learning disability - a term that includes hundreds of disorders and involves dozens of vocational specialties. This book is a comprehensive analysis of the field of learning disabilities, the largest, fastest growing and one of the most controversial areas in special education today. Roa Lynn surveys the major problem areas of learning disabilities, evaluates past endeavors in the field and examines current research and practice. Uncommonly broad in scope, it not only discusses education and remediation, but probes sensitive and controversial areas of politics and economics, personalities and fads, and the relationship between learning disabilities and juvenile delinquency." --Amazon.