The Human Genome Diversity Project (HGDP) was launched in 1991 by a group of population geneticists whose aim was to map genetic diversity in hundreds of human populations by tracing the similarities and differences between them. It quickly became controversial and was accused of racism and 'bad science' because of the special interest paid to sampling cell material from isolated and indigenous populations. The author spent a year carrying out participant observation in two of the laboratories involved and provides fascinating insights into daily routines and technologies used in those laboratories and also into issues of normativity, standardization and naturalisation. Drawing on debates and theoretical perspectives from across the social sciences, M'charek explores the relationship between the tools used to produce knowledge and the knowledge thus produced in a way that illuminates the HGDP but also contributes to our broader understanding of the contemporary life sciences and their social implications.

This title was first published in 2003. The fulfilment of health care rights in a world where resources are scarce is a prominent issue. In this volume, Frances H. Miller introduces studies on a wide variety of aspects of this important yet complex process.

Human Evolutionary Genetics is a groundbreaking text which for the first time brings together molecular genetics and genomics to the study of the origins and movements of human populations. Starting with an overview of molecular genomics for the non-specialist (which can be a useful review for those with a more genetic background), the book shows how data from the post-genomic era can be used to examine human origins and the human colonization of the planet, richly illustrated with genetic trees and global maps. For the first time in a textbook, the authors outline how genetic data and the understanding of our origins which emerges, can be applied to contemporary population analyses, including genealogies, forensics and medicine.

Health and the American Indian discusses contemporary health and social concerns in American Indian communities and offers recommendations for prevention, treatment, and future research. You’ll benefit from recent research that examines topics relating to physical and mental health, such as health care, gambling, historical trauma response, child welfare, and Native American involvement in the Human Genome Diversity Project. In Health and the American Indian, you’ll find cutting-edge information about various concerns in American Indian society that will assist you in offering culturally sensitive services to clients. Using in-depth studies and statistics to highlight issues facing Native Americans, this book provides you with an understanding of American Indian views on family, health, and being Native American. With Health and the American Indian, you’ll find suggestions and methods to sharpen your service skills, including: exploring differences in the historical trauma response between men and women to effectively treat both groups investigating the positive and negative effects that gambling has had on members of the community by using Grounded Theory combating problems related to gambling by redistributing a percentage of gaming income towards gaming abuse prevention and treatment programs, traditional community activities, and child care participating in continuing education or in-service training on cultural issues and understanding a client’s cultural background in order to better help clients utilize the benefits of the Indian Child Welfare Act using the Family Systems approach along with community health representatives in health care interventions to provide better health care for Native Americans Exploring the topic of genetic engineering, Health and the American Indian discusses the Human Genome Diversity Project, gene patents, and how Native Americans who supply genetic material are being exploited and see no compensation for their assistance. Examining how exploitation and fear stand in the way of better physical and mental well-being, Health and the American Indian offers you methods and suggestions to help prevent and improve existing health issues in Native American communities.

Examines how contemporary relations between indigenous and Western nations are shaped by the dynamics of power, the politics of property, and the apologetics of law.

Human population genetic research (HPGR) seeks to identify the diversity and variation of the human genome and how human group and individual genetic diversity has developed. This book asks whether developing countries are well prepared for the ethical and legal conduct of human population genetic research, with specific regard to vulnerable target group protection. The book highlights particular issues raised by genetic research on populations as a whole, such as the potential harm specific groups may suffer in genetic research, and the capacity for current frameworks of Western developed countries to provide adequate protections for these target populations. Using The People’s Republic of China as a key example, Yue Wang argues that since the target groups of HPGR are almost always from isolated and rural areas of developing countries, the ethical and legal frameworks for human subject protection need to be reconsidered in order to eliminate, or at least reduce, the vulnerability of those groups. While most discussion in this field focuses on the impact of genetic research on individuals, this book breaks new ground in exploring how the interests of target groups are also seriously implicated in genetic work. In evaluating current regulations concerning prevention of harm to vulnerable groups, the book also puts forward an alternative model for group protection in the context of human population genetic research in developing countries. The book will be of great interest to students and academics of medical law, ethics, and the implications of genetic research.

Where do our distant ancestors come from, and which routes did they travel around the globe as hunter–gatherers in prehistoric times? Genomics provides a fascinating insight into these questions and unlocks a mass of information carried by strands of DNA in each cell of the human body. For Indigenous peoples, scientific research of any kind evokes past – and not forgotten – suffering, racial and racist taxonomy, and, finally, dispossession. Survival of human cell lines outside the body clashes with traditional beliefs, as does the notion that DNA may tell a story different from their own creation story. Extracting and analysing DNA is a new science, barely a few decades old. In the medical field, it carries the promise of genetically adapted health-care. However, if this is to be done, genetic identity has to be defined first. While a narrow genetic definition might be usable by medical science, it does not do justice to Indigenous peoples’ cultural identity and raises the question of governmental benefits where their genetic identity is not strong enough. People migrate and intermix, and have always done so. Genomics trace the genes but not the cultures. Cultural survival – or revival – and Indigenous group cohesion are unrelated to DNA, explaining why Indigenous leaders adamantly refuse genetic testing. This book deals with the issues surrounding ‘biomapping’ the Indigenous, seen from the viewpoints of discourse analysts, historians, lawyers, anthropologists, sociologists, museum curators, health-care specialists, and Native researchers.

Examines the ethical, legal, and regulatory challenges presented as genomics become commonplace, easily available consumer products.