This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.

The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidencebased reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care. Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words. Key Features: Addresses a growing need for specific provider resources in neonatal palliative care Covers the clinical and emotional aspects of palliative care for babies and their families Abundant resources for effective and compassionate family-centered care Case studies with critical thinking questions Accompanying video clips of healthcare and family interactions Supplemental image bank included

This is a definitive, state-of-the-art resource for professionals who provide bereavement care to families when a baby or older child dies.. Culling the most important new evidence from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice recommendations to fill a gap in the current literature. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal and pediatric death. Expert contributors from the fields of nursing and other health professions disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families in regard to their experiences and needs.

**Selected for Doody's Core Titles® 2024 in Pediatrics**A must-have reference for both general physicians and advanced practice providers, Fanaroff and Martin's Neonatal-Perinatal Medicine: Diseases of the Fetus and Infant provides trusted, time-tested guidance on the management and evidence-based treatment of problems in the mother, fetus, and neonate. The fully revised 12th Edition is an ideal resource for every stage of practice and remains the most comprehensive, multidisciplinary text in the field. Drs. Richard J. Martin and Avroy A. Fanaroff from Rainbow Babies and Children's Hospital bring you up to date with everything from diagnosis and treatment selection through post-treatment strategies and management of complications—all with a dual focus on neonatology and perinatology, and all designed to help you improve the quality of life and long-term outcomes of your patients. - Provides up-to-date, evidence-based content throughout, including state-of-the-art coverage of personalized medicine and genetics. - Contains new chapters on Big Data for the Smallest Patients: What we can learn from neonatal database research; Role of Umbilical Cord Management in Neonatal Resuscitation; Care of Periviable Micropremies: the Japanese perspective; Longer Term Respiratory Outcomes of Prematurity; and Perinatal Palliative Care. - Features extensive updates throughout, including blood and the hematopoietic system; social and economic contributors to neonatal outcome; fetal growth restriction; diagnostic imaging of the neonate; anesthesia in the neonate; postnatal bacterial infections; neonatal management of congenital heart disease; and retinopathy of prematurity. - Includes over 600 detailed, full-color illustrations that depict disorders in the clinical setting and explain complex information. - Provides indexing in both volumes that provides quick access to specific guidance. - Offers a global perspective with an expanded number of international contributors. - An ideal resource for clinical practice as well as recommended reading for neonatology board review or maintenance of certification. - Any additional digital ancillary content may publish up to 6 weeks following the publication date.

Foundations of Perinatal Genetic Counseling is the first book to provide a practical introduction to the concepts and skills needed to practice genetic counseling with clients before and during pregnancy. In this new edition, the authors provide a revised and updated overview of these concepts including pregnancy basics, information of the perinatal genetic counseling session and family history, testing options and procedures (e.g., diagnostic testing, screening, carrier screening, assisted reproductive technology), common indications, pregnancy management, common counseling situations, and suggested learning activities. With newly expanded material, updated guidelines, and discussions on technological and procedural advancements in the field, Foundations of Perinatal Genetic Counseling: Second Edition is an essential companion for both the classroom and the clinic. Authored by genetic counselors at the forefront of contemporary perinatal practice, this all-in-one reference provides an accessible yet comprehensive overview of the most pertinent information for new learners and practicing counselors. Perinatal genetic counselors will find themselves returning to this unique resource long after their training has come to an end.

Odborná publikace nabízí komplexní přístup pro výuku profesionální psychosociální péče o rodiče po perinatální ztrátě. Na základě dostupných důkazů a osvědčených postupů představuje jednotlivé inovativní metody výuky, zásady práce se studenty v pregraduální, postgraduální i kontinuální formě vzdělávání. Zkoumá konkrétní metody hodnocení, které se v současné době používají ve vzdělávání perinatální paliativní péče. Základem psychosociální péče o truchlící rodiče je umění komunikace a další interpersonální dovednosti. Profesionálové pečující o rodiče po perinatální ztrátě upozorňují často na vysokou náročnost této péče, na stres a silné emoce, které tato situace přináší nejen zasaženým rodičům, ale i pečujícím. Proto je v knize zdůrazněna i nutnost systematické psychohygieny a péče o psychiku pečujících. Text je rozdělen do dvou hlavních částí. První část knihy je zaměřena na teoretické didaktické aspekty výuky psychosociální perinatální paliativní péče a poskytuje důkazy pro výuku tohoto náročného tématu. Druhá část publikace nabízí praktická cvičení, která jsou efektivní k dosažení dlouhodobé změny v chování studentů. Kniha je určena především vyučujícím, lektorům a facilitátorům, kteří se věnují výuce studentů zdravotnických oborů (porodních asistentek, neonatologických nebo všeobecných sester, mediků) nebo sociálních věd (sociálních pracovnic, klinických psychologů, teologů apod.). Nebo se věnují výuce postgraduální a kontinuální u profesionálů, kteří se s péčí o rodiče po perinatální ztrátě setkávají v praxi. Publikace je také vhodná pro organizátory edukačních programů v prostředí porodnic a neonatologických oddělení nemocnic. Recenzentka Doc. PhDr. Radka Bužgová, Ph.D. napsala: "Předností knihy je, že všechna témata jsou zpracována na základě dostupných vědeckých důkazů a osvědčených postupů. Na základě vědeckých důkazů jsou navržena konkrétní doporučení pro výuku perinatální paliativní péče v pregraduálním i postgraduálním a kontinuálním vzdělávání. Kniha je jednoznačně inspirací pro vyučující, lektory či facilitátory, kteří se věnují výuce studentů zdravotnických oborů v rámci pregraduální i postgraduální formy vzdělávání v oblasti perinatální ztráty."

Now updated and expanded—a gentle and comprehensive guide for parents expecting a baby with a prenatal diagnosis of a life-limiting condition. When prenatal testing reveals that a baby is expected to die before or shortly after birth, many parents choose to proceed with the pregnancy and embrace the time they are able to have with their baby, before birth as well as afterward. With compassion and support, A Gift of Time walks these parents step-by-step through this challenging and emotional experience—from receiving the diagnosis to coping with the pregnancy and making plans for the baby's birth and peaceful death. The second edition of this gentle guide offers inspiration and reassurance through the voices of numerous parents who have walked this path with their beloved baby. Their moving experiences are stories not only of grief but of joy and peace. This edition: • Expands the content substantially to incorporate new research and guidelines • Features additional vignettes from more than 160 parents about their experiences and coping strategies • Offers encouragement and more practical ideas for moving forward, including updated guidance for decision-making and ideas for embracing the time with the baby, from before birth to after death • Describes the importance of perinatal hospice and palliative care, which has continued to grow worldwide since the first edition was published, and how to access this care Drawing from parent experiences and published research, this new edition is full of practical suggestions for parents as well as health care professionals. Caring and thoughtful, A Gift of Time helps parents navigate this difficult news and the journey that follows.

- Increased focus on international data, evidence-based research and exemplars for the principles of best practice - New chapters - Care of the normal newborn - Care of the neonate with congenital abnormality Extensively revised content on neonatal nutrition and fluid management

Completely revised and updated, Avery's Diseases of the Newborn, 11th Edition, remains your #1 choice for clinically focused, cutting-edge guidance on the evaluation, diagnosis, and treatment of diseases of the newborn. Drs. Christine A. Gleason, Taylor Sawyer, and a team of expert contributing authors provide comprehensive, up-to-date coverage of every key disease and condition affecting newborns, keeping you current in this fast-changing field. You'll find the specific strategies you need to confidently provide care for this unique patient population, in a full-color, easy-to-use single volume that focuses on key areas of practice. - Reflects the latest developments on all aspects of newborn evaluation and management, featuring new content, new chapters, new contributors, and fresh perspectives from a new co-editor. - Brings you the latest on current topics such as perinatal/neonatal COVID-19, genomics and precision medicine, acute and chronic neonatal respiratory disorders, brain injury and neuroprotection, necrotizing enterocolitis, probiotics, palliative care, prenatal drug exposure, retinopathy of prematurity, and more. - Provides clinically relevant, practical guidance in concise, focused chapters that include summary boxes, suggested readings, and more than 500 full-color illustrations, micrographs, and photographs. - Contains the 2020 American Academy of Pediatrics and American Heart Association neonatal resuscitation guidelines and the 2022 American Academy of Pediatrics guidelines on the management of hyperbilirubinemia. - Serves as a reliable quick reference for clinical questions and an excellent resource for board review. - Any additional digital ancillary content may publish up to 6 weeks following the publication date.