Psychological Support By Cognitive Behavioral Therapy For Werdnig Hoffmann Disease

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Werdnig-Hoffmann disease, a severe form of spinal muscular atrophy (SMA), presents not only profound physical challenges but also significant psychological and emotional burdens for those diagnosed and their families. This book, Psychological Support by Cognitive Behavioral Therapy for Werdnig-Hoffmann Disease, seeks to address these psychological dimensions by offering a comprehensive framework for understanding the emotional toll of the disease and providing evidence-based therapeutic strategies to improve quality of life. The journey through a life with Werdnig-Hoffmann disease involves not only managing a progressive and often debilitating physical condition but also navigating the intricate psychological landscape that comes with it. Individuals with this disease, their caregivers, and healthcare providers are often faced with feelings of grief, helplessness, anxiety, and frustration. Coping with such emotions is essential for enhancing the quality of life and ensuring better overall well-being. Cognitive Behavioral Therapy (CBT) has proven to be an effective tool in managing emotional difficulties in chronic illness. CBT focuses on understanding the connection between thoughts, feelings, and behaviors and offers practical tools to alter negative thought patterns, improve emotional regulation, and promote healthier coping strategies. The therapy is particularly beneficial in the context of genetic disorders like Werdnig-Hoffmann disease, where individuals may face unique challenges such as identity struggles, anxiety about genetic transmission, and the emotional impact of medical decisions. This book is intended to provide a solid foundation for clinicians, caregivers, and patients themselves to explore the intersection of mental health and genetic disease. It combines an in-depth understanding of Werdnig-Hoffmann disease with insights into genetics, epigenetics, and hereditary conditions. Through this, I aim to offer not just a therapeutic guide but a pathway to emotional resilience in the face of genetic illness. In addition to providing theoretical and clinical perspectives, this work delves into the application of CBT, addressing common issues faced by patients such as chronic pain, societal pressures, feelings of isolation, and the emotional toll on caregivers. By focusing on practical tools and therapeutic strategies, I hope to empower those affected by Werdnig-Hoffmann disease to manage their emotions, foster resilience, and improve their mental health alongside physical treatment. The integration of personalized therapeutic approaches is emphasized throughout the book, as each individual’s experience with this disease is unique. It is my belief that through this personalized care and the application of CBT techniques, individuals can better navigate the emotional challenges of Werdnig-Hoffmann disease, ultimately leading to improved psychological well-being and quality of life. I would like to dedicate this book to the individuals and families affected by Werdnig-Hoffmann disease and other similar conditions. Your courage, perseverance, and resilience in the face of adversity are the inspiration behind this work. It is my hope that this book serves as a supportive guide in your journey, helping to alleviate some of the emotional burdens and fostering a deeper sense of peace and empowerment.

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Genre : Psychology
Author : Edenilson Brandl
Publisher : Edenilson Brandl
Release :
File : 1486 Pages
ISBN-13 :


Bopod Wong S Nursing Care Of Infants And Children

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The most trusted authority in pediatric nursing, Wong's Nursing Care of Infants and Children provides unmatched, comprehensive coverage of pediatric growth, development, and conditions. Its unique 'age and stage' approach covers child development and health promotion as well as specific health problems organized by age groups and body systems. Leading pediatric experts Dr. Marilyn Hockenberry and David Wilson provide an evidence-based, clinical perspective based on nearly 30 years of hands-on experience. Easy to read and extensively illustrated, this edition focuses on patient-centered outcomes and includes updates on topics such as the late preterm infant, immunizations, the H1N1 virus, and childhood obesity. A clear, straightforward writing style makes content easy to understand. Unique Evidence-Based Practice boxes help you apply both research and critical thought processes to support and guide the outcomes of nursing care. Unique Atraumatic Care boxes contain techniques for care that minimize pain, discomfort, or stress. Unique Critical Thinking exercises help you test and develop your own analytical skills. A unique focus on family content emphasizes the role and influence of the family in health and illness with a separate chapter, discussions throughout the text, and family-centered care boxes. Nursing Care Guidelines provide clear, step-by-step, detailed instructions on performing specific skills or procedures. Unique Emergency Treatment boxes serve as a quick reference for critical situations. Unique Cultural Awareness boxes highlight ways in which variations in beliefs and practices affect nursing care for children. A developmental approach identifies each stage of a child's growth. Health promotion chapters emphasize principles of wellness and injury prevention for each age group. Student-friendly features include chapter outlines, learning objectives, key points, references, and related topics and electronic resources to help you study and review important content. A community focus helps you care for children outside the clinical setting. Nursing Care Plans include models for planning patient care, with nursing diagnoses, patient/family goals, nursing interventions/rationales, expected outcomes, and NIC and NOC guidelines. Nursing Tips include helpful hints and practical, clinical information, and Nursing Alerts provide critical information that must be considered in providing care.

Product Details :

Genre : Medical
Author : Marilyn J. Hockenberry
Publisher : Elsevier Health Sciences
Release : 2014-01-30
File : 1845 Pages
ISBN-13 : 9780323293402


Neurology

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Neurology: A Queen Square Textbook, second edition, is a fully revised and updated companion that demonstrates the rapid pace of advancement within clinical neurology and applied neurosciences A comprehensive and practical overview of current developments within clinical neurology, synthesising clinical neurology with translational research Expertly edited and written by neurologists, neuroscientists and neurosurgeons working at Queen Square, advised by an distinguished International Editor team to present a global perspective Introductory chapters summarise the basic sciences underpinning the practice of clinical neurology, including genetics, channelopathies, immunology, neurophysiology and neuropathology All chapters fully revised and updated to reflect the increasing role of neurologists in acute care Includes new contributions concerning major developments in the care of; stroke, epilepsy, dementia, Parkinson's disease, multiple sclerosis, neuromuscular disease, headache, infections, spinal disease, cranial nerve disease, neuropsychiatry, neurogenetics, neuro-oncology, uroneurology, neuro-otology, neuro-ophthalmology, pain medicine, sleep medicine, metabolic disease, drugs and toxins, autonomic disease, systemic disease, and neurorehabilitationfor dementia, epilepsy, headaches, neuro-genetics and many more

Product Details :

Genre : Medical
Author : Charles Clarke
Publisher : John Wiley & Sons
Release : 2016-07-11
File : 1096 Pages
ISBN-13 : 9781118486153


Kaufman S Clinical Neurology For Psychiatrists E Book

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The only reference to focus on the must-know aspects of neurology for psychiatrists, Kaufman's Clinical Neurology for Psychiatrists, 9th Edition, brings you up to date with the knowledge you need to excel on the American Board of Psychiatry and Neurology and other examinations. It fully covers the exam topics you'll encounter, along with new content, high-quality illustrations, and multiple-choice questions. In addition, this book prepares you for clinical work in the 21st century. - Discusses timely, clinically-relevant topics such as chronic and acute traumatic brain injury, Alzheimer's disease, correctible causes of dementia, violence, neurologic illnesses that present with symptoms of autism, illicit drug use, stroke, migraine, Parkinson's disease, tardive dyskinesia current treatments, and more. - Includes nearly 2,000 multiple-choice questions both in print and online—all written to help you succeed on the ABPN certifying exam. - Features new content, new and improved clinical illustrations: life-like patient sketches, anatomy line drawings, CTs, MRIs, and EEGs. - Explains each condition's neurologic and psychiatric features, easily performed office and bedside examinations, appropriate tests, differential diagnosis, and management options. - Correlates neurologic illnesses with the DSM-5.

Product Details :

Genre : Medical
Author : David Myland Kaufman
Publisher : Elsevier Health Sciences
Release : 2022-01-14
File : 723 Pages
ISBN-13 : 9780323796811


Childhood Disorders Diagnostic Desk Reference

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The Childhood Disorders Diagnostic Desk Reference provides detailed information on the identification, prevalence, treatment, and ramifications of hundreds of childhood disorders. Written in nonmedical terms, this go-to reference presents in a single source the critical information you need to refer an affected child to a qualified physician or other specialist, hold a conference with the child's caregivers, and appropriately tailor an educational experience to fit the child's abilities. Spanning the pediatric medical, psychiatric, and educational fields, the range of disorders and diseases covered includes rare disorders coupled with hard-to-find information regarding more frequently encountered childhood disorders. Each of the nearly 700 entries provides: A definition of the disorder Special education concerns Incidence and prevalence rates Prognosis and future research Characteristics of the disorder References Treatment methods Complete with both an extensive symptom index and resources for further investigation, Childhood Disorders Diagnostic Desk Reference is the ideal volume for administrators, educators, social workers, and mental health professionals working in schools.

Product Details :

Genre : Education
Author : Elaine Fletcher-Janzen
Publisher : John Wiley & Sons
Release : 2003-02-27
File : 728 Pages
ISBN-13 : UOM:39015056676896


Concise Encyclopedia Of Psychology

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BOOK EXCERPT:

Named "Reference Book of the Year" by the American Library Association, the Concise Encyclopedia of Psychology set a new standard for psychology references that has remained unmatched until now. This Second Edition has been thoroughly updated and expanded to reflect all developments in psychology that have occurred since the publication of the first edition. It was edited with the guidance of 36 consulting and associate editors (including 17 past presidents of the American Psychological Association) and now contains more than 2,000 articles?including hundreds of new entries in all major categories of psychology?written by 500 authorities in their fields.

Product Details :

Genre : Medical
Author : Raymond J. Corsini
Publisher : John Wiley & Sons
Release : 1998-03-26
File : 956 Pages
ISBN-13 : UOM:39015047114254


Umphred S Neurological Rehabilitation E Book

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**Selected for Doody's Core Titles® 2024 in Physical Medicine and Rehabilitation** Develop problem-solving strategies for individualized, effective neurologic care! Under the new leadership of Rolando Lazaro, Umphred's Neurological Rehabilitation, 7th Edition, covers the therapeutic management of people with activity limitations, participation restrictions, and quality of life issues following a neurological event. This comprehensive reference reviews basic theory and addresses the best evidence for evaluation tools and interventions commonly used in today's clinical practice. It applies a time-tested, evidence-based approach to neurological rehabilitation that is perfect for both the classroom and the clinic. Now fully searchable with additional case studies through Student Consult, this edition includes updated chapters and the latest advances in neuroscience. - Comprehensive reference offers a thorough understanding of all aspects of neurological rehabilitation. - Expert authorship and editors lend their experience and guidance for on-the-job success. - UNIQUE! A section on neurological problems accompanying specific system problems includes hot topics such as poor vision, vestibular dysfunction, dementia and problems with cognition, and aging with a disability. - A problem-solving approach helps you apply your knowledge to examinations, evaluations, prognoses, and intervention strategies. - Evidence-based research sets up best practices, covering topics such as the theory of neurologic rehabilitation, screening and diagnostic tests, treatments and interventions, and the patient's psychosocial concerns. - Case studies use real-world examples to promote problem-solving skills. - Comprehensive coverage of neurological rehabilitation across the lifespan — from pediatrics to geriatrics. - Terminology adheres to the best practices, follows The Guide to Physical Therapy Practice and the WHO-ICF World Health model. - NEW! enhanced eBook on Student Consult. - UPDATED! Color photos and line drawings clearly demonstrate important concepts and clinical conditions students will encounter in practice. - NEW and EXPANDED! Additional case studies and videos illustrate how concepts apply to practice. - Updated chapters incorporate the latest advances and the newest information in neurological rehabilitation strategies. - NEW and UNIQUE! New chapter on concussion has been added. - Separate and expanded chapters on two important topics: Balance and Vestibular.

Product Details :

Genre : Medical
Author : Rolando T. Lazaro
Publisher : Elsevier Health Sciences
Release : 2019-12-05
File : 1414 Pages
ISBN-13 : 9780323641944


Linguistics And Language Behavior Abstracts

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BOOK EXCERPT:

LLBA contains abstracts of the world's literature in linguistics and language-related research, book abstracts, book review listings, and enhanced bibliographic citations of relevant dissertations." Related disciplines such as anthropology, education, ethnology, information science, medicine, and communications are covered. Also includes some reference to papers in published conference proceedings.

Product Details :

Genre : Language and languages
Author :
Publisher :
Release : 1999
File : 622 Pages
ISBN-13 : UOM:39015079919224


Nelson Essentials Of Pediatrics

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BOOK EXCERPT:

The Third Edition of this resource features a review of all the common and uncommon disorders in children. It distils the outstanding features of the bestselling Nelson Textbook of Pediatrics, 15th Edition into a clinically-orientated reference.

Product Details :

Genre : Medical
Author : Waldo Emerson Nelson
Publisher : W.B. Saunders Company
Release : 1990
File : 772 Pages
ISBN-13 : 0721622291


Functional Neurology For Practitioners Of Manual Medicine

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BOOK EXCERPT:

Functional Neurology utilizes our understanding of how the nervous system works in the treatment of a variety of clinical conditions. Fuctional Neurology for Practitioners of Manual Medicine takes the reader from the embryonic beginnings of the nervous system, through the biochemistry of receptor activation and on to the functional systems of the nervous system. Both the student and the clinician will find this text a valuable source of information and clinical guidance in the application of detailed neurological principles to their practice. Concepts, relationships and scientific mechanisms of the nervous system function are covered, and this aids the practitioner in developing their clinical approach to a wide variety of patient presentations. This text explores the neurological impact of the application of functional neurological principles, using a detailed clinical approach supported by clinical case studies. The text is fully referenced, which allows the reader to immediately apply the concepts to practice situations. New for this edition are new chapters on pain (including headache) and theoretical evidence, plus extensive electronic resources supporting the text. - Utilizes our understanding of how the nervous system works in the treatment of a variety of clinical conditions - Demystifies the clinical results seen in the practice of Functional Neurology and scientifically validates its clinical success - Addresses function rather than pathology, allowing the reader to gain a firm understanding of the neurological processes seen in health and disease - Contains clinical cases which are designed to be read and answered before starting the chapter to allow the reader to gauge their current state of knowledge - 'Quick Facts' introduce new concepts or allow rapid review of information already presented in the text in a brief and succinct manner - Contains a detailed overview of the concepts relating to our understanding of the development of emotion to demonstrate the link between physical health and the mind - Contains abundant references to support controversial concepts - Contains new chapters on theoretical evidence and the management of pain (including headache) - Contains a wide range of additional case studies, 'clinical conundrums' and key questions and answers for each topic - Bonus DVD contains fully searchable text, a downloadable image bank, brain dissection and video clips of the manipulative techniques and examination procedures found within the volume plus 200 multiple choice questions

Product Details :

Genre : Medical
Author : Randy W. Beck
Publisher : Elsevier Health Sciences
Release : 2011-09-21
File : 414 Pages
ISBN-13 : 9780702051043