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BOOK EXCERPT:
When is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement in the research enterprise. Yet, the risks of returning individual research resultsâ€"such as results with unknown validityâ€"and the associated burdens on the research enterprise are competing considerations. Returning Individual Research Results to Participants reviews the current evidence on the benefits, harms, and costs of returning individual research results, while also considering the ethical, social, operational, and regulatory aspects of the practice. This report includes 12 recommendations directed to various stakeholdersâ€"investigators, sponsors, research institutions, institutional review boards (IRBs), regulators, and participantsâ€"and are designed to help (1) support decision making regarding the return of results on a study-by-study basis, (2) promote high-quality individual research results, (3) foster participant understanding of individual research results, and (4) revise and harmonize current regulations.
Product Details :
Genre |
: Medical |
Author |
: National Academies of Sciences, Engineering, and Medicine |
Publisher |
: National Academies Press |
Release |
: 2018-08-23 |
File |
: 399 Pages |
ISBN-13 |
: 9780309475204 |
eBook Download
BOOK EXCERPT:
When is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement in the research enterprise. Yet, the risks of returning individual research resultsâ€"such as results with unknown validityâ€"and the associated burdens on the research enterprise are competing considerations. Returning Individual Research Results to Participants reviews the current evidence on the benefits, harms, and costs of returning individual research results, while also considering the ethical, social, operational, and regulatory aspects of the practice. This report includes 12 recommendations directed to various stakeholdersâ€"investigators, sponsors, research institutions, institutional review boards (IRBs), regulators, and participantsâ€"and are designed to help (1) support decision making regarding the return of results on a study-by-study basis, (2) promote high-quality individual research results, (3) foster participant understanding of individual research results, and (4) revise and harmonize current regulations.
Product Details :
Genre |
: Medical |
Author |
: National Academies of Sciences, Engineering, and Medicine |
Publisher |
: National Academies Press |
Release |
: 2018-09-23 |
File |
: 399 Pages |
ISBN-13 |
: 9780309475174 |
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BOOK EXCERPT:
The field of genetics is rapidly evolving, and new medical breakthroughs are occurring as a result of advances in our knowledge of genetics. This series continually publishes important reviews of the broadest interest to geneticists and their colleagues in affiliated disciplines.
Product Details :
Genre |
: Science |
Author |
: |
Publisher |
: Academic Press |
Release |
: 2013-11-21 |
File |
: 172 Pages |
ISBN-13 |
: 012407703X |
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Product Details :
Genre |
: Law |
Author |
: |
Publisher |
: |
Release |
: 2016 |
File |
: 950 Pages |
ISBN-13 |
: OSU:32437123583078 |
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BOOK EXCERPT:
Product Details :
Genre |
: |
Author |
: |
Publisher |
: |
Release |
: 2012 |
File |
: 446 Pages |
ISBN-13 |
: OSU:32437121995068 |
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BOOK EXCERPT:
"There is a long-standing tension in biomedical research arising from a conflict in core values--the desire to respect the interests and desires of research participants by communicating results contrasted with the responsibility to protect participants from uncertain, perhaps poorly validated information. Traditionally, the balance has been tipped toward the latter resulting in what has been termed "helicopter research." The notion here is that investigators drop into communities or people's lives, engage with them in often very personal ways, and then take off, never to be heard from again. Yet people are curious about themselves, particularly about their health and their family's health, leaving a sense of frustration and loss when investigators take but do not share"--Page ix.
Product Details :
Genre |
: HEALTH & FITNESS |
Author |
: National Academies of Sciences, Engineering, and Medicine (U.S.). Committee on the Return of Individual-Specific Research Results Generated in Research Laboratories |
Publisher |
: |
Release |
: 2018 |
File |
: 370 Pages |
ISBN-13 |
: 030947518X |
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Product Details :
Genre |
: Electronic journals |
Author |
: |
Publisher |
: |
Release |
: 2013 |
File |
: 228 Pages |
ISBN-13 |
: UFL:30031001998847 |
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Product Details :
Genre |
: Law |
Author |
: University of British Columbia |
Publisher |
: |
Release |
: 2014 |
File |
: 846 Pages |
ISBN-13 |
: OSU:32437123433993 |
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Product Details :
Genre |
: Environmental toxicology |
Author |
: California. Department of Public Health |
Publisher |
: |
Release |
: 2010 |
File |
: 144 Pages |
ISBN-13 |
: UCBK:C113703057 |
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Product Details :
Genre |
: Administrative law |
Author |
: |
Publisher |
: |
Release |
: 2006-08 |
File |
: 316 Pages |
ISBN-13 |
: CORNELL:31924109300685 |