This Comprehensive Reference Provides A Unique Perspective On Quality Of Life Issues For Oncology Nurses In Education, Research, And Clinical Practice, And Presents Quality Of Life Issues Related To Specific Diseases, Treatments, And Populations.

This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.

Worldwide economic constraints on health care systems have highlighted the importance of evidence-based medicine and evidence-based health policy. The resulting clinical trials and health services research studies require instruments to monitor the outcomes of care and the output of thehealth system. However, the over-abundance of competing measurement scales can make choosing a measure difficult at best. Measuring Health provides in-depth reviews of over 100 of the leading health measurement tools and serves as a guide for choosing among them.LNow in its third edition, thisbook provides a critical overview of the field of health measurement, with a technical introduction and discussion of the history and future directions for the field. This latest edition updates the information on each of the measures previously reviewed, and includes a complete new chapter onanxiety measurement to accompany the one on depression. It has also added new instruments to those previously reviewed in each of the chapters in the book.LChapters cover measurements of physical disability, social health, psychological well-being, anxiety, depression, mental status testing, pain,general health status and quality of life. Each chapter presents a tabular comparison of the quality of the instruments reviewed, followed by a detailed description of each method, covering its purpose and conceptual basis, its reliability and validity and, where possible, shows a copy of theactual scale. To ensure accuracy of the information, each review has been approved by the original author of each instrument or by an acknowledged expert.

Considerable data and expertise have accumulated in the assessment of quality of life, but to date this assessment has largely been restricted to the devel- ment of instruments that are used only in the setting in which they were dev- oped. The chapters of this book, taken together, apply this expertise to a re- tively new area: international quality of life assessment, that is to say, consid- ing quality of life from an international perspective, and developing methods for the assessment of quality of life that can be used in more than one cultural setting. The World Health Organization (WHO) initiatives in the area of inter- tional quality of life assessment arose for several compelling reasons. The World Health Organization has a commitment to equitable and accessible health care for all. This commitment refers not only to health in its narrow sense of the absence of disease and impairment, but to health as astate of physical, mental and social well-being. Disease and impairment affect not just the physical domain of life but also a person's psychological state, level of - dependence and social relationships. This is a reality not yet fully reflected in health care settings. The broadening in focus in the measurement of health to include indicators which address this more holistic sense of health is a welcome emerging trend. The primary aim of any health intervention is to maximise health and minimise disease, thereby enhancing patients' quality of life.

Quality of Life: From Nursing and Patient Perspectives, Third Edition is a comprehensive text that offers a unique perspective on quality of life by reflecting the voices of patients and families receiving or having received care for cancer. It is an ideal reference for oncology nursing students and oncology nurses in a variety of settings, including inpatient units, outpatient clinics, ambulatory care centers, cancer centers, research centers, home care agencies, and hospices. Topics explore evolution of quality of life in oncology, theories and conceptual models, life methodological and measurement issues, clinical implications, cancer survivorship, and quality of life stories by patients and families. Completely updated and revised, this new edition contains two new research chapters and new material on chronic illness, measuring quality of life in different age groups, and patient perspectives.

Science today makes progress through the imaginative harvesting of knowledge g- erated by the many, rather than as the result of the isolated endeavours of the lone researcher. Innovations in the physical sciences from the development of nuclear te- nologies to the laser, have involved research teams working collectively. Collabo- tion is the rule rather than the exception. In the social sciences this model is all but reversed. Here it is not uncommon to encounter the solitary enthusiast, relishing an independence of spirit and pursuing their own private research agenda. All the more surprising then that a group of researchers from several different disciplines, should have come together in the late 1980s with nothing more substantial on the agenda than that they share their thoughts on the topic of measuring the value of health, or more specifically, on the way that the value of health might vary across different countries. Few scientific enterprises can have begun as cautiously or uncertainly. Few can have developed a cohesion and dynamism that lasted decades and continues to drive ahead after long years of scientific endeavour. Such is the good fortune that befell those of us who came together to form what was later to be known as the Euro- Qol Group. The Group's creation is principally due to the shared professional asso- ation of its members with one man, an economist by training and a visionary academic by inclination and temperament - Alan Williams.

This book introduces students and clinicians to common statistical methods and study designs used in pharmacoepidemiology, outcomes research, and more.

Considerable data and expertise have accumulated in the assessment of quality of life, but to date this assessment has largely been restricted to the devel- ment of instruments that are used only in the setting in which they were dev- oped. The chapters of this book, taken together, apply this expertise to a re- tively new area: international quality of life assessment, that is to say, consid- ing quality of life from an international perspective, and developing methods for the assessment of quality of life that can be used in more than one cultural setting. The World Health Organization (WHO) initiatives in the area of inter- tional quality of life assessment arose for several compelling reasons. The World Health Organization has a commitment to equitable and accessible health care for all. This commitment refers not only to health in its narrow sense of the absence of disease and impairment, but to health as astate of physical, mental and social well-being. Disease and impairment affect not just the physical domain of life but also a person's psychological state, level of - dependence and social relationships. This is a reality not yet fully reflected in health care settings. The broadening in focus in the measurement of health to include indicators which address this more holistic sense of health is a welcome emerging trend. The primary aim of any health intervention is to maximise health and minimise disease, thereby enhancing patients' quality of life.

Handbook of Health Research Methods is an essential tool for researchers and postgraduate students taking masters courses, or undertaking doctoral programmes, in health services evaluation, health sciences, health management, public health, nursing, sociology, socio-biology, medicine and epidemiology. However, the book also appeals to health professionals who wish to broaden their knowledge of research methods in order to make effective policy and practice decisions.