In the first book devoted exclusively to the contentious politics of autism, noted political scientist and public policy expert John J. Pitney, Jr., explains how autism has evolved into a heated political issue disputed by scientists, educators, social workers, and families. Nearly everything about autism is subject to debate and struggle, including its measurement and definition. Organizational attempts to deal with autism have resulted in not a single “autism policy,” but a vast array of policies at the federal, state, and local levels, which often leave people with autism and their families frustrated and confused. Americans with autism are citizens, friends, coworkers, sons, daughters, fathers, and mothers. No longer simply the objects of public policy, they are active participants in current policy debates. Pitney’s fascinating look at how public policy is made and implemented offers networks of concerned parents, educators, and researchers a compass to navigate the current systems and hope for a path towards more regularized and effective policies for America’s autism community.

The Politics of Autism investigates the truths and fictions of public understanding about autism, questioning apparent realities too sensitive or impolitic to challenge. Is there really more autism? How has the count expanded by diagnosing autism over other conditions? Have scientific methods in autism diagnosis gone hand-in-hand with autism increases? Are mild autism cases really a 'disorder,' rather than personality variant? Can autism be quiescent in childhood but truly first recognizable in adulthood? Why does popular media often portray people with autism as odd geniuses ignoring the kind of autism most have? Siegel tackles thorny issues and perennial questions: How do we weigh likely treatment gains with treatment costs? Why does our autism education persist in teaching academic subjects some never master? Why do we fail to plan realistically for autistic adulthood? Which parents get caught up in non-mainstream 'treatments' and fear of vaccines? Readers will see an insider's view of controversies in autism research. Siegel's views, sometimes iconoclastic, always frank and informed, challenge broad unexamined assumptions about our understanding of autism. Each chapter addresses different issues, data, and social policy recommendations. A chapter-by-chapter bibliography with URLs provides both popular media and scientific references.

This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.

Debating how Canada compares, both regionally and in relation to other countries, is a national pastime. This book examines how political scientists apply diverse comparative strategies to better understand Canadian political life. Using a variety of methods, the contributors use comparison to examine topics as diverse as Indigenous rights, Canadian voting behaviour, activist movements, climate policy, and immigrant retention. While the theoretical perspectives and kinds of questions asked vary greatly, as a whole they demonstrate how the “art of comparing” is an important strategy for understanding Canadian identity politics, political mobilization, political institutions, and public policy. Ultimately, this book establishes how adopting a more systematic comparative outlook is essential – not only to revitalize the study of Canadian politics but also to achieve a more nuanced understanding of Canada as a whole.

Autism is now considered to be one of the most common developmental disorders today, yet 100 years ago the term did not exist. This book examines the historical and social events that enabled autism to be identified as a distinct disorder in the early twentieth century. The author, herself the mother of an autistic child, argues that although there is without doubt a biogenetic component to the condition, it is the social factors involved in its identification, interpretation and remediation that determine what it means to be autistic. Constructing Autism explores the social practices and institutions that reflect and shape the way we think about autism and what effects this has on autistic people and their families. Unravelling what appears to be the ‘truth’ about autism, this informative book steps behind the history of its emergence as a modern disorder to see how it has become a crisis of twenty-first century child development.

"With a new preface by the author"--Cover.

Since first being identified as a distinct psychiatric disorder in 1943, autism has been steeped in contestation and controversy. Present-day skirmishes over the potential causes of autism, how or even if it should be treated, and the place of Asperger’s syndrome on the autism spectrum are the subjects of intense debate in the research community, in the media, and among those with autism and their families. Bringing together innovative work on autism by international scholars in the social sciences and humanities, Worlds of Autism boldly challenges the deficit narrative prevalent in both popular and scientific accounts of autism spectrum disorders, instead situating autism within an abilities framework that respects the complex personhood of individuals with autism. A major contribution to the emerging, interdisciplinary field of critical autism studies, this book is methodologically and conceptually broad. Its authors explore the philosophical questions raised by autism, such as how it complicates neurotypical understandings of personhood; grapple with the politics that inform autism research, treatment, and care; investigate the diagnosis of autism and the recognition of difference; and assess representations of autism and stories told by and about those with autism. From empathy, social circles, and Internet communities to biopolitics, genetics, and diagnoses, Worlds of Autism features a range of perspectives on autistic subjectivities and the politics of cognitive difference, confronting society’s assumptions about those with autism and the characterization of autism as a disability. Contributors: Dana Lee Baker, Washington State U; Beatrice Bonniau, Paris Descartes U; Charlotte Brownlow, U of Southern Queensland, Australia; Kristin Bumiller, Amherst College; Brigitte Chamak, Paris Descartes U; Kristina Chew, Saint Peter’s U, New Jersey; Patrick McDonagh, Concordia U, Montreal; Stuart Murray, U of Leeds; Majia Holmer Nadesan, Arizona State U; Christina Nicolaidis, Portland State U; Lindsay O'Dell, Open U, London; Francisco Ortega, State U of Rio de Janeiro; Mark Osteen, Loyola U, Maryland; Dawn Eddings Prince; Dora Raymaker; Sara Ryan, U of Oxford; Lila Walsh.

Critical Interventions in the Ethics of Healthcare argues that traditional modes of bioethics are proving incommensurable with burgeoning biotechnologies and consequently, emerging subjectivities. Drawn from diverse disciplines, this volume works toward a new mode of discourse in bioethics, offering a critique of the current norms and constraints under which Western healthcare operates. The contributions imagine new, less paternalistic, terms by which bioethics might proceed - terms that do not resort to exclusively Western models of liberal humanism or to the logic of neoliberal economies. It is argued that in this way, we can begin to develop an ethical vocabulary that does justice to the challenges of our age. Bringing together theorists, practitioners and clinicians to present a wide variety of related disciplinary concerns and perspectives on bioethics, this volume challenges the underlying assumptions that continue to hold sway in the ethics of medicine and health sciences.

War on Autism examines autism as a historically specific and power-laden cultural phenomenon that has much to teach about the social organization of a neoliberal western modernity. Bringing together a variety of interpretive theoretical perspectives including critical disability studies, queer and critical race theory, and cultural studies, the book analyzes the social significance and productive effects of contemporary discourses of autism as these are produced and circulated in the field of autism advocacy. Anne McGuire reveals how in the field of autism advocacy, autism often appears as an abbreviation, its multiple meanings distilled to various "red flag" warnings in awareness campaigns, bulleted biomedical "facts" in information pamphlets, or worrisome statistics in policy reports. She analyzes the relationships between these fragmentary enactments of autism and traces their continuities to reveal an underlying, powerful, and ubiquitous logic of violence that casts autism as a pathological threat that advocacy must work to eliminate. Such logic, McGuire contends, functions to delimit the role of the "good" autism advocate to one who is positioned "against" autism. Book jacket.

Is there a gene for autism? Despite a billion-dollar, twenty-year effort to find out—and the more elusive the answer, the greater the search seems to become—no single autism gene has been identified. In Multiple Autisms, Jennifer S. Singh sets out to discover how autism emerged as a genetic disorder and how this affects those who study autism and those who live with it. This is the first sustained analysis of the practices, politics, and meaning of autism genetics from a scientific, cultural, and social perspective. In 2004, when Singh began her research, the prevalence of autism was reported as 1 in 150 children. Ten years later, the number had jumped to 1 in 100, with the disorder five times more common in boys than in girls. Meanwhile the diagnosis changed to “autistic spectrum disorders,” and investigations began to focus more on genomics than genetics, less on single genes than on hundreds of interacting genes. Multiple Autisms charts this shift and its consequences through nine years of ethnographic observations, analysis of scientific and related literatures, and morethan seventy interviews with autism scientists, parents of children with autism, and people on the autism spectrum. The book maps out the social history of parental activism in autism genetics, the scientific optimism about finding a gene for autism and the subsequent failure, and the cost in personal and social terms of viewing and translating autism through a genomic lens. How is genetic information useful to people living with autism? By considering this question alongside the scientific and social issues that autism research raises, Singh’s work shows us the true reach and implications of a genomic gaze.