This book provides a definitive critical introduction to service user views and involvement. It addresses both the theoretical and practical issues of service user involvement, and includes initiatives on the impact and outcomes from involvement.

Social Care, Service Users and User Involvement provides a definitive introduction to practical, philosophical and theoretical issues at the heart of user involvement. This book provides an accessible account of the latest research findings regarding user involvement on three levels: the delivery and provision of services, practice and practitioners, and research and evaluation. It explores a wide range of service user needs and concerns, including the latest developments in personalisation and the effect of the Equality Act 2010. First-hand accounts illustrate the range of issues and service user needs which could be addressed by increased involvement within and beyond the social care system. The book also distinguishes between user views and user involvement, and addresses their processes outcomes and impact, as well as their measurement. This book will be a key source of information for care workers, service managers, policy makers, researchers, service users and social and health care professionals involved in social care and support service planning.

This is the first text to examine the principal elements of service user involvement and participation across both adult and children′s services. A valuable learning resource, it draws together information from research, service users, carers and practitioners across both groups. In addition, it gives an overview of the specific knowledge, attitude and skills that social workers need for training at qualifying level and integrates theory with evidence to inform everyday social work practice. Furthermore, case studies and activities encourage reflection and the application of this knowledge to practice situations.

This unique book provides a rare look at social work and palliative care from the perspective of service users. Drawing on new original research, the authors examine service users' experiences, tracking their journeys through it, exploring the care they receive and the effects of culture and difference through their first hand comments and ideas.

Service user involvement in research can range from the extremes of being the subject, to being the initiator or investigator, of a research study. The activity of the professional researcher can also range from being the person undertaking the research, to being a partner with, or mentor to, service users. This broad scope of levels of involvement is reflected in the contributions in this book, both in the research experiences reported and in the writing of the chapters themselves. With contributions coming from a range of service areas including learning disabilities, cancer care, older people and mental illness, chapters look at important research issues such as: strategies for working in true partnership avoiding ‘tokenism’ involving service users at all stages of the research process communication and terminology involving service users of different ages and experience training needs of professionals and service users problems surrounding ‘payment’ for service users other ethical and practical issues. This book is invaluable reading for researchers in health and social care from academic, professional and service user backgrounds.

Worldwide, there has been a growth in service user involvement in education and research in recent years. This handbook is the first book which identifies what is happening in different regions of the world to provide different countries and client groups with the opportunity to learn from each other. The book is divided into five sections: Section One examines service user involvement in context exploring theoretical issues which underpin service user involvement. In Section Two we focus on the state of service user involvement in human services education and research across the globe including examples of innovative practice, but also identifying examples of where it is not happening and why. Section Three offers more detailed examination of such involvement in a wide range of professional education learning settings. Section Four focuses on the involvement of service users in research involving a wide range of service user groups and situations. Lastly, Section Five explores future challenges for education and research to ensure involvement remains meaningful. The book includes forty-eight chapters, including seventeen case-studies, from all regions of the world, this is the first book to both highlight the subject’s methodological and theoretical issues and give practical examples in education and research for those wishing to engage in this field. It will be of interest to all service users, scholars and students of social work, nursing, occupational therapy, and other human service subjects.

This book fills an important niche in the market providing practical expert advice on the involvement of service users - patients, carers and the public - in nursing and healthcare research. An invaluable guide for anyone working or involved in nursing and healthcare research, this book provides a step-by-step guide to the principles and process of involvement, including understanding the rationale for involvement, designing involvement, working with service users, and evaluating what has been achieved. With illustrations, worked examples and tool sheets throughout, this evidence-based guide uses real life examples from recent research studies in health and social care research, thus relating theory to practice in a meaningful way. The Handbook of Service User Involvement in Nursing & Healthcare Research introduces a wide range of key issues, including: Why? Why should researchers involve service users? How? How can researchers and service users work together successfully and productively? Who? Who chooses to become involved in research? How are issues of representation and diversity addressed? When? At what stage should service users be involved in the research process?

Service user and carer engagement in health and social care, and in the education of practitioners in this area, is emerging as one of the most important new drivers within government policy in a number of countries. However, beyond the rhetoric, there are few guides that address the practicalities of setting up and running such a project. This book is unique in that it will appeal to practitioners, policy makers, and commissioners in health and social care practice and education who buy in to the principles of service user engagement, but who find it hard to know how to progress the practicalities. Based on the set up and running of the unique and very successful Comensus project, this practical and accessible text will provide a framework for building authentic and sustainable community engagement in health and social care education and practice.

This is a timely book, given the increasing emphasis on user participation in both research and health and social service provision, that can be read in conjunction with a more general book on research..." David Hicks, Liverpool John Moores University, UK User participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation. The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice. In addition the text: Considers the issues, challenges and rewards of user participation research Draws on the actual experience of doing research and working with users Includes the voices and contributions of users in reporting research User Participation in Health and Social Care Research: Voices, Values and Evaluation is key reading for students, researchers, practitioners and users themselves wishing to undertake participative research involving service users.

There is now an increasing interest in and questioning of user involvement in health and social care. As government policy emphasises the need for user involvement in policy and provision, this study provides a timely exploration of the state of service user networking and knowledge. The study reports the views of a diverse range of service users nationally about user networking and knowledge. Networking is a crucial way for service users to be able to support each other and work together for change. By making their voices heard and sharing their experience, views and ideas, they aim to ensure that user knowledge becomes part of the evidence base of health and social care policy and practice. The report looks in detail at the difficulties facing service users and their organisations and the ways forward that they identify. It pays particular attention to issues of diversity. The research was coordinated by Shaping Our Lives, the national user controlled organisation and network.